Health issues
Tuberous sclerosis
What is Tuberous sclerosis? Tuberous sclerosis, also known as Bourneville disease,  is a rare genetic disease characterised by the development of benign tumours principally affecting the brain, skin, eyes, kidneys, heart and lungs. The consequences are of variable severity but are potentially serious. There is a high risk of epilepsy and also retarded development, intellectual disability and autism when the brain is affected. There can also be a significant impact on health and quality of life when other organs are affected.  Treatment This disease requires an early diagnosis, in early childhood or even before birth, and monitoring by a specialised multidisciplinary team. This is arranged at the Children’s Hospital in the form of regular and systematic consultations with the various specialists. For the comfort of the children and their families the consultations are held on the same day and take place once a year, although sometimes more frequently depending on the age and particularities of the child. The monitoring begins before birth and continues through the growth years of childhood and into adulthood.   As they reach adulthood a transition consultation can be arranged at the Erasmus Hospital. An early screening for epilepsy, before the appearance of the first symptoms, is proposed systematically so as to avert the consequences. Depending on their individual situation, patients can benefit from innovative treatment in line with international recommendations. Our team cooperates closely with other specialists and paramedical teams  at the Children’s Hospital and with specialist teams, for epilepsy surgery in particular, if the child’s situation requires it. We network with GPs and paediatricians, child therapists (physiotherapists, speech therapists, occupational therapists, psychologists etc.), support services, respite care services, associations and psycho-medico-social centres.    Specific care pathways Our team cooperates closely with national and international centres that care for persons with tuberous sclerosis as well as with parents’ associations to achieve a continuous improvement in patient care and to disseminate information on this rare disease and its treatment.  Our specialists Children's patients (Children's Hospital)The multidisciplinary consultation is organised by the Neuroaediatrics Department (Co-ordinating doctor: Dr Anne Monier; Co-ordinating secretary: Ms Daniela Wayllace).Coordinating doctor and neuropaediatrician: Dr Anne MonierDermatologist: Dr Pamela El NemnomOphthalmologist: Dr Sophie LhoirNephrologist: Dr Khalid IsmailiCardiologist : Dr Hugues DessyGeneticist: Dr Catheline VilainCoordinating secretary: Mme Daniela Wayllace (02 477 39 67)Adult patients (Erasme Hospital)The consultation is organised by the Neurology Department (Cons [dot] Neuro [dot] erasme [at] hubruxelles [dot] be (Cons[dot]Neuro[dot]erasme[at]hubruxelles[dot]be))Neurologist: Dr Chantal Depondt
Tuberous sclerosis
Services
Emergency Department
Contacting the Emergency Department In the event of a life-threatening emergency, dial 112 immediately.Emergency Department address:Rue Meylemeersch 56, 1070 BrusselsOpen 24 hours a day, 7 days a weekFor any other questions or informationEmergency Department Reception:+32 (0)2 555 34 02Medical Secretariat:Ms. Klein Maryse – Ms. Stéphanie Vanlier+32 (0)2 555 34 00Secmed [dot] urgences [dot] Erasme [at] hubruxelles [dot] bePlease contact us between 8:30 a.m. and 12:00 p.m. and from 2:00 p.m. to 4:00 p.m. for all requests related to documents, certificates and attestations. Image How to reach the Emergency Department? Our department is accessible:By car – visitor parking located directly next to the Emergency DepartmentBy public transport (metro – Line 5, Erasme station)By ambulance – via 112Clear signage is provided from the hospital entrance to the Emergency Department reception. Image Upon arrival at the Emergency Department If you come to the Emergency Department on your own, please go directly to the administrative reception desk located at the entrance of the department.Please bring with you:Your identity cardYour health insurance cardAny additional health insurance coverageRelevant medical documents (prescriptions, health record, etc.)In case of waiting timeAlthough we do everything possible to reduce waiting times, a waiting period may be necessary depending on patient volume and the severity of ongoing cases. We therefore recommend that you bring:A phone chargerA book, tablet or headphonesItems to occupy young children: toys, comfort items, snacks, etc.Our team will keep you informed throughout your care. Thank you for your patience and understanding. Image Our role The Emergency Department of the H.U.B. brings together three university hospitals (Erasme Hospital, the Jules Bordet Institute and the Children’s Hospital - HUDERF) and provides the population with access to general and specialized medical care 24/7.A qualified team of emergency physicians and specialized nurses ensures follow-up of complex conditions already treated within our institution, facilitates coordination with specialists, and welcomes all new patients regardless of the actual or perceived severity of their condition.The Emergency Department has recently been completely redesigned to offer a modern, functional and patient-centered environment. Through an ambitious renovation, we have placed people at the heart of care. Our department is organized to provide patients and their families with a smooth care pathway, guiding patients through dedicated care zones adapted to the severity of their condition, in a safe and caring environment.Key figuresCapacity of 40,000 patients per year3 triage boxes + 4 care zonesUp to 8 beds in the Observation Unit (UDS)Dedicated pediatric and adult careBilingual service: FR / NLTeaching mission for physicians in training Image Image Image Vision and operating model Our mission is based on three fundamental pillars:Care: providing respectful and compassionate reception to every patientCure: ensuring accurate diagnosis and rapid treatmentCounsel: guaranteeing clear information and appropriate medical follow-upOur visionTo create a smooth, humane and efficient patient experience, supported by an innovative organization and an architecture designed around care.A paired care modelEach patient is cared for by a medical–nursing duo from arrival and throughout their entire care pathway. This model significantly improves quality of care, communication and safety.We also benefit from a unique multidisciplinary team in Brussels: emergency physicians, internists, anesthesiologists, surgeons, senior pediatricians, and more. This breadth of expertise guarantees comprehensive, high-level care. Our infrastructure Our new infrastructure, designed around the concept of “function supported by architecture”, includes:Triage areasTriage levels 1 to 3: rapid assessment according to severityTriage 3 – Ultra Ultra Short Stay: minor cases that can be treated quickly without hospitalizationCare areasZones 1, 2 and 3: according to medical complexityTriage 4: minor conditions not requiring hospitalizationShock room: for the most critical casesObservation Unit (UDS)6 to 8 temporary hospitalization bedsShort-term monitoring (3 to 24 hours)Waiting for an inpatient bed when necessaryTrauma careSpecialized area for surgical and orthopedic emergenciesDirect access to medical imaging for faster treatmentWhat’s next?Renovation work continues with:Renovation of the psychiatric care areaReorganization of medical examination rooms and the medical-nursing workspaceAll work is carried out without interruption of services, with full respect for patient and staff comfort. Our team Emergency physiciansNurses specialized in emergency careInternists, anesthesiologists, surgeons and pediatriciansPsychiatristsAmbulance staff and SMUR/SAMU driversAdministrative and reception staffDirector of the Emergency DepartmentDr. Adeline HIGUETDirector of the H.U.B. Pediatric DepartmentDr. Inge ROGGENDeputy DirectorProf. Nicolas MPOTOS ResidentsDr. Stéphan WILMINDr. Isabelle TCHOUNKEUDr. Anouk ETIENNEDr. Hamza YOUSFIInternistsProf. Benoit VOKAERProf. Frédéric VANDERGHENSTHead NurseNele OSTYNHead Nurse of the Emergency DepartmentCarina GOOSSENS Image Image Image Image Our medical intervention vehicle The Emergency Department of Erasme Hospital operates a Medical Intervention Vehicle (MIV). On board are a driver, an emergency physician and a nurse. At the request of emergency services (112), they can be dispatched to the field with all necessary resuscitation equipment to provide immediate medical care. The MIV carries out nearly 2,000 missions per year in the Brussels region and Flemish Brabant. Accreditation as a Level 1 Trauma Center Since 2022, Erasme Hospital has been accredited as a Level 1 Trauma Center. This specialized care pathway is activated for severely injured patients with suspected serious internal injuries. They are managed by specialists in orthopedics, neurosurgery, digestive surgery, and more. The Trauma Center includes the Emergency Department, Intensive Care Unit, Blood Bank, Medical Imaging and Operating Theatre. Image Teaching Since 2020, future emergency physicians are required to complete training sessions at SimLab, the ULB simulation laboratory. Using mannequins connected to dedicated software, they learn clinical procedures (intubation, catheter placement, etc.), how to respond to realistic clinical scenarios, and how to communicate effectively with other healthcare professionals.
Urgences - Erasme