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Preterm infants: neurodevelopmental follow-up
“Henri Sliwowski” Reference Centre for the neurodevelopmental follow-up of children born very preterm.  Image The Reference Centre Follow-up of very preterm infants: essential support for a brighter futureThe birth of a very preterm infant is both a profoundly challenging and hopeful experience. Thanks to remarkable progress in paediatric medicine, the survival chances of babies born before 32 weeks of pregnancy or weighing less than 1,500 grams have improved considerably.However, these advances come with new challenges: such children remain at increased risk of developing motor, cognitive, and socio-emotional difficulties, as well as behavioural disorders or sensory impairments.This is why specific and regular follow-up is essential. It not only allows potential difficulties to be detected at an early stage, but also provides the opportunity to introduce tailored solutions that support the child’s future development.This programme is designed to give children born very preterm the best possible chance to thrive, while offering families reassurance and support tailored to their needs.%20secmed [dot] neuroped [at] hubruxelles [dot] be (Envoyer un message) Care that keeps pace with medical progress Follow-up is based on a multidisciplinary approach that brings together various experts: paediatricians, a paediatric neurologist, physiotherapists, psychomotor therapists, speech and language therapists, and neuropsychologists.The follow-up includes four assessments (A, B, C, D) scheduled at 6 months, 1 year, 2.5 years and 5 years of age.If further follow-up is required, doctors will refer you to external therapists (speech therapist, physiotherapist, psychomotor therapist, psychologist), depending on your child’s specific needs.  The aim is to intervene as early as possible in order to: Stimulate motor development in cases of delay or motor difficulties.Promote harmonious cognitive development, particularly in the presence of learning difficulties.Support parent–child interactions to help prevent potential relational difficulties.Monitor sensory abilities, such as vision and hearing, which may be affected by prematurity.Recent studies confirm that early screening, combined with prompt intervention, can significantly improve the quality of life of both children and their families. Dr Florence Christiaens PHU – Department of Paediatric Neurology, Hôpital Universitaire de BruxellesPhysician, Paediatric Neurology, Specialist in Rehabilitation"The follow-up of very preterm infants is a genuine breakthrough in child health. It represents an essential safety net, ensuring that these fragile children receive optimal development and tailored support to meet their needs.Your child has already shown incredible strength by coming into the world earlier than expected. With this follow-up, you can be confident that they will receive the support needed to grow and flourish, step by step, by your side." Prendre rendez-vous  Image A team of specialists by your side Vojtech Stejskal, Ludovic Legros – NeonatologistsFlorence Christiaens – Paediatric NeurologistBrigitte de Bast, Anne Goffart, Anne Soquay – PhysiotherapistsMorgane Colin, Camille Schlogel – Neuropsychologists / PsychologistsMarie-Amélie Ponteville – Speech and Language Therapist Partners The activity of the accredited centre for the follow-up of very preterm infants, Henri Szliwowski, takes place on two sites: the H.U.B. (Erasme site) and Delta.Children born at the HUDERF are seen for their follow-up at the Erasme Hospital. In collaboration withLe service de néonatologie de l’H.U.B( Situé sur les 2 sites: Anderlecht et Laeken)  et de l’hôpital DeltaLe centre de référence pour l’IMOC ou CIRICULes centres de références pour les pathologies du spectre autistiqueLes divers centres privés proposant kinésithérapie neurologique, psychomotricité et logopédieCentre de référence en pathologie autistique, CRFNI, Centre IMOCPublished articles- Dev Med Child Neurol 2018 Apr;60(4):342-355.  doi: 10.1111/dmcn.13675.- Eur J Paediatr Neurol. 2020 Sep:28:133-141 doi: 10.1016/j.ejpn.2020.06.007. Epub 2020 Jul 16- J Pediatr 2023 Nov:262:113600. doi: 10.1016/j.jpeds.2023.113600. Epub 2023 Jul 2. FAQ Qu’est ce qu’un enfant grand prématuré Un enfant enfants né avant 32 semaines de grossesse ou pesant moins de 1,5 kg à la naissance. Qu’est-ce que la "convention des enfants nés grands prématurés C’est un programme d’évaluation du neurodéveloppement proposé par l’INAMI pour les enfants nés avant 32 semaines de grossesse ou pesant moins de 1,5 kg à la naissance. Il offre 4 bilans pour suivre leur développement.   Pourquoi mon enfant a-t-il besoin de ces bilans La prématurité expose les enfants à des risques de retard de développement moteur, cognitif et socio-émotionnel, ainsi qu’à des troubles du comportement ou des déficits sensoriels. Un suivi bien structuré vise à :Détecter précocement les troubles du développement (retard moteur, troubles de l’apprentissage, déficits sensoriels).Orienter rapidement les enfants vers des spécialistes et des prises en charge adaptées.Prévenir ou limiter les conséquences à long terme de la prématurité grâce à des interventions précoces.Accompagner les parents dans leur rôle, en identifiant et en soutenant les éventuelles difficultés relationnelles entre eux et leur enfant. À quels moments ont lieu les bilans ? - 6 mois (Bilan A) - 1 an (Bilan B) - 2,5 ans (Bilan C) - 5 ans (Bilan D)  En quoi consiste un bilan ? Vous rencontrerez des paramédicaux spécialisés comme des kinésithérapeutes, logopède et psychologues. Ils évalueront le développement moteur, cognitif et langagier de votre enfant.  Les médecins spécialistes, néonatologues, neuropédiatres évalueront également votre enfant au niveau clinique et vous remettrons et expliqueront les résultats de ces évaluations. Si nécessaire, ils vous adresseront à des thérapeutes extérieurs (logopède, kinésithérapeute, psychomotricien, psychologue), en fonction des besoins de votre enfant. Des examens complémentaires seront proposés pourront également être prescris Mon enfant se porte bien, est-ce vraiment nécessaire ? Oui. La majorité des enfants vont bien, mais certains troubles apparaissent tardivement. Grâce à ce programme, chaque étape de développement est surveillée avec attention, les paramédicaux et médecins que vous rencontrerez peuvent détecter un trouble de développement même minime ce qui va permettre d’agir rapidement si nécessaire. Les progrès de la médecine pédiatrique offrent aujourd’hui des perspectives incroyablement positives, et votre rôle en tant que parent est essentiel dans ce processus. Combien coûtent les bilans Les bilans sont presque entièrement pris en charge par votre mutuelle. Vous n’aurez que peu ou pas de frais à payer.  Que faire si un problème est détecté ? Si un suivi est nécessaire, les médecins vous orienteront vers des spécialistes (logopède, kinésithérapeute, psychologue) pour aider votre enfant à progresser. Des examens complémentaires pourront également être prescris (audiométrie de contrôle, examen en ophtalmologie, imagerie cérébrale, …) Comment serai-je informé des rendez-vous ? Vous recevrez toutes les informations sur la convention pendant le séjour de votre enfant en néonatologie. Nous vous rappellerons ensuite pour planifier les rendez-vous.  Qui participe aux bilans ? Bilan A et B : Néonatologue, kinésithérapeute, psychologue/neuropsychologue. Bilan C : Neuropédiatre, kinésithérapeute, psychologue/neuropsychologue. Bilan D : Neuropédiatre, logopède, kinésithérapeute, psychologue/neuropsychologue.  A qui puis-je poser mes questions ou demander de l’aide ? Pendant votre séjour en néonatologie, les médecins et infirmières, pourront répondre à vos questions. Notre psychologue, Mme Colin organise une réunion d’information 2x par mois (à l’Hôpital Erasme), elle sera votre point de contact. N’hésitez pas à poser vos questions ou à demander plus d’informations lors de cette rencontre.  Vous pouvez également contacter les secrétaires qui organisent les rendez-vous des suivis dans cette conventionMme Hiquet et Mme Lucaciu au 02-5556733 ou 02-5556978En tant que parent, il est normal d’être inquiet ou de se poser des questions face à l’inconnu. Sachez que ce suivi est là pour vous épauler, pas pour vous alarmer. Il s’agit d’un accompagnement bienveillant et personnalisé, destiné à garantir le meilleur avenir possible à votre enfant.
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Professionals
Health professionals Jobs Lien vers Jobs Students Lien vers Students Suppliers Lien vers Suppliers Journalists H.U.B professionals If you work at the Erasme Hospital and would like to check your e-mail, your leave balance or your working hours, or connect to the internal wi-fi network, find below the links for a remote connection wherever you are: Webmail STP interface (timetables and holidays) IT helpdesk  Tutorials for using the medical portal and DMI Internal wi-fi network Image Research The Erasme hospital provides a stimulating environment for clinical and fundamental research. On one hand, clinical research enables patients to benefit from the most innovative treatment. On the other hand, fundamental research allows us to acquire a better understanding of the human body, its cells and connections with diseases present. This is essential in achieving progress in combating diseases. Ethics Committee Clinical trials Teaching The Erasme Hospital provides the ideal environment for the transmission of knowledge between its constituent institutions. Training in all the healthcare professions (doctors, nurses, paramedical staff, lab technicians, etc.) is very much hands on, in close contact with the medical teams and patients. Clinical biology Discover the Brussels University Hospital Laboratory (LHUB-ULB). Visit the website
Services
Psychiatry
Under construction The Erasmus hospital offers this service for the care of our patients. The page is currently being updated. However, you can make an appointment for this service by clicking on "make an appointment". Our team Image Our specialists
Psychiatrie - Erasme
Services
Interventional radiology
Our role Interventional radiology is a set of techniques that are minimally invasive and use medical imaging to visualise, access and act on an organ for the purposes of diagnosis and/or treatment. Image Image Image We use ultrasound, angiography, scanners and sometimes MRI to carry out biopsies or ablations, place a stent or inject a treatment. In principle, this is possible for all the systems and most of the organs of the human body. Dr Fadi Tannouri Head of the Interhospital Department of Interventional Radiology at the H.U.B Our specialities The H.U.B’s Interhospital Department of Interventional Radiology is divided into 5 sections:   Vascular disease and embolization covers arterial or venous angiography and angioplasty (placing of a stent and prosthesis, in cooperation with  vascular surgery) and embolization. The latter consists of blocking a blood vessel for therapeutic purposes, to stop haemorrhaging for example.   The osteoarticular  section covers infiltrations, biopsies, the thermoablation of bone tumours and cementoplasty (injection of intraosseous “cement”) with or without percutaneous osteosynthesis, in cooperation with orthopaedic surgery. The nephrology, urology and gynaecology  sector covers the embolization of uterine fibroids, of benign  prostatic hypertrophy and of pelvic  varicoceles and varicose veins, as well as nephrostomy. This section also provides vascular access for dialysis and creates arteriovenous fistula by percutaneous means.  The oncological section permits the placing of implantable ports and PICC lines (venous access),  pain management through infiltration, neuroloysis or radiofrequency as well as the treatment of certain cancers (see Focus).   The thoracic pathologies section covers biopsies, haemostatic embolization, percutaneous ablation of lung tumours and thermoablation of benign thyroid nodules.    Interventional radiology also covers biopsies and drainage under ultrasound, radiological or tomodensitomety (scanner) control.     Our team Image Our specialists Focus Interventional radiology is used for a minimally invasive treatment of certain cancers and benign tumours. A number of techniques are proposed:   The destruction of liver, kidney and lung tumours by thermoablation (radiofrequencies, microwaves and cryotherapy);   Chemoembolization, radioembolization and portal embolization;    Thermoablation of benign thyroid nodules ; Embolization of prostatic arteries in the framework of benign hypertrophy of the prostate gland.    Forward-looking studies Percutaneous AVF creation outcome and complications Prostate artery embolization: comparing embolic material Varicocele embolization: comparing embolic material
Radiologie Interventionnelle Vasculaire Et Générale - Erasme
Article
A rapid diagnosis pathway for colorectal cancer at the H.U.B
Teams from the Gastroenterology and Digestive Oncology Departments of the Erasmus Hospital and Jules Bordet Institute are now working hand-in-hand within the Brussels University Hospital (H.U.B).  They propose a rapid diagnosis pathway reserved for patients showing warning signs, a positive result in a search for blood in the stools or who are at high risk.  On 22 and 23 March a giant colon will be installed in the lobbies of the Erasmus Hospital and Jules Bordet Institute. Professionals from our institutions will be there on the day to help you discover this organ and highlight the importance of screening for colorectal cancer.     Essential screening   Every year more than 8,000 Belgians, both men and women, are diagnosed with colorectal cancer. In 90% of cases they are aged over 50. One third of these persons will die from their cancer due to a late diagnosis. If detected in time, 90% of these persons are cured.  Faced with this problem, our professionals decided to put into place a rapid diagnosis pathway for patients presenting a warning sign or a high risk.  Colonoscopy screening is essential as it reduces the risk of developing colorectal cancer and reduces the mortality by 50%. This examination has therapeutic as well as diagnostic benefits as it not only allows a cancer to be detected at an early stage but also prevents its occurrence by removing colorectal polyps and early cancers.    Who is the screening targeting?   You can make an appointment with our professionals who will rapidly schedule a colonoscopy if you present warning signs such as an unexplained and lasting change in bowel movements, the presence of blood in the stools, abdominal pain or unexplained weight loss. If you have a personal or family history of polyps and/or colorectal cancer, inflammatory diseases of the digestive tube (Crohn's disease or proctocolitis) or a family history of multiple polyposis or hereditary colon cancer you will be prioritised.    With or without warning signs, from the age of 50 you can also undergo a simple test for the presence of blood in the stools, carried out in your own home following an invitation sent by the Region.    Do you show any of these symptoms? Then make an appointment with our specialists who will schedule your tests as quickly as possible on the basis of your symptoms.    Gastroenterology consultation: • Jules Bordet Institute 02 541 34 80 • Erasmus 02 555 35 04  Screening consultation at the Jules Bordet Institute (if no symptoms): 02 541 30 00   A giant colon to boost awareness   March is awareness month for colorectal cancers. On this occasion the Brussels University Hospital invites you to come and discover a giant colon. Accompanied by health professionals you can actually go inside the structure to discover this organ, in 3D, and better understand why and how to protect yourself against colorectal cancer, one of the most deadly cancers in Belgium.  The dates are 22 March at the Erasmus Hospital between 9 am and 4 pm and 23 March at the Jules Bordet Institute between 9 am and 4 pm.   
Health issues
Rare and complex epilepsies
Description Epilepsy is a chronic neurological disease. It is common, can first appear at any age and covers a very heterogeneous group of diseases with multiple causes. In one third of cases epileptic seizures continue despite medication (refractory epilepsy).  A considerable number of patients present a rare and distinct epileptic syndrome for which the prognosis for controlling the seizures and neurological development is poor. These rare epilepsies are for the most part of genetic origin. Rare and complex epilepsies affect almost 5 persons in every 10,000 of the population.  Treatment The Epileptology Clinic of the Erasmus Hospital and Queen Fabiola Children’s University Hospital (HUDERF) possesses specific expertise in treating complex epilepsies.  The centre is recognised by the INAMI/RIZIV [Belgian National Institute for Health and Disability Insurance] as an approved Belgian centre for the treatment of refractory epilepsies.  The rooms at our Epilepsy Exploration Unit ere specially equipped for prolonged video EEG monitoring. The Erasmus Hospital is specialised in intracranial EEG monitoring for the pre-surgery assessment of refractory epilepsies while the HUDERF is specialised in treating epilepsy in children. The multidisciplinary approach at the two sites permits a full range of diagnostic and treatment methods, from the latest medicines and ketogenic diet to surgery.   The H.U.B’s Rare Diseases Function provides access to leading edge  genetic diagnostic technologies that make it possible to identify a genetic cause in a large number of patients with rare and complex  epilepsies and thereby permit targeted treatment. Thanks to close cooperation with neuropaediatrics at the Erasmus Hospital and the HUDERF we are able to offer paediatric patients a structured transition to care in adulthood that is adapted specifically to the individual needs of each patient. Our multidisciplinary medical and paramedical care allows us to treat not only epilepsy but also the medical conditions that are often associated with epilepsy. Advice Genetic factors play an important role in epilepsy, especially if the epilepsy first appears in childhood or is associated with developmental disorders.  Specialised genetic testing is then indicated. Several hundred genes are associated with epilepsy. Identifying a genetic cause not only permits a precise diagnosis but also genetic advice, the prognosis and – increasingly frequently – precision treatment. For patients with refractory epilepsy, pre-surgery exploration can lead to a surgical solution (brain surgery, gamma knife, vagus nerve stimulation, deep brain stimulation, Laser Interstitial Thermal Therapy (LITT). Research Other areas of expertise and research activities:Prolonged EEG monitoring at the Intensive Care Unit to diagnose epileptic seizures in seriously ill patientsParticipation in pharmaceutical trials sponsored by the industry on the use of the latest drugsParticipation in research and expertise networks:Epinord (Franco-Belgian intracranial ’EEG expertise group)ERN EpiCARE (European Reference Network for Rare and Complex Epilepsies)The genetic research networks EpiGen, Epi25 and Consortium on Complex Epilepsies of the International League Against Epilepsy (ILAE)Critical Care EEG Monitoring Research Consortium(CCEMRC)  Documents and useful links Epileptology Clinic HUDERF Department of NeuropaediatricsEpilepsy Exploration UnitERN EpiCARE (European Reference Network for Rare and Complex Epilepsies)Epi25 NetworkConsortium on Complex Epilepsies of the International League Against Epilepsy (ILAE)Critical Care EEG Monitoring Research Consortium (CCEMRC)Patients’ associations: https://ligueepilepsie.behttps://www.epilepsieliga.be Our specialists Neurologists specialising in epilepsy: Prof. Chantal Depondt (Head of the Rare Neurological Diseases Clinic)Prof. Nicolas Gaspard (Head of the Department of Neurology)Dr. Benjamin Legros (Head of the Adult Epileptology Clinic and of the Reference Centre for the treatment of Refractory Epilepsy)Paediatricians specialising in epilepsy: Prof. Alec Aeby (Head of the Department of Neuropaediatrics)Dr. Tom Balfroid (Erasmus Hospital)Dr. Cynthia Prigogine (HUDERF)Dr. Claudine Sculier (Erasmus Hospital – Medical consultant at the Epilepsy Exploration Unit)Dr. Pauline Van Gyseghem (HUDERF)
Rare and complex epilepsies
Health issues
Rare diseases
Rare diseases function Patients with a rare disease must receive proper and specific care: a rapid diagnosis followed by treatment in care units with staff trained in these rare diseases. The mission of the Rare Diseases Function (8 in Belgium) is to coordinate, with teams with the required expertise, the care pathways and scientific research and training projects of all the professionals involved  in providing an adapted and constantly evolving care.  
Rare diseases
Services
Palliative care
Our role This multidisciplinary team of healthcare staff exercising different professions aims to ensure continuity of care at the Erasmus Hospital and externally when the patient approaches end of life or requires symptomatic treatment, notably to manage pain and uncomfortable symptoms such as nausea, vomiting, hiccups, constipation, etc. Our mobile team is available on request for the care team, patient and patient’s family.    Image Our specialities Our team consists  of liaison psychiatrists, internists, nurses, psychologists, physiotherapists, dietitians, pharmacists and social workers.  Their missions are to give timely and/or repeated opinions without assuming direct responsibility for the patient, to offer support to those around the patient and the care teams, to prepare for discharge, return home or transfer to another institution or rest home in close cooperation with the family GP and the required outpatient assistance and care structures. All team members listen to the patient, possibly provide advice and increase the awareness of all the interlocutors while respecting their individual philosophical convictions and religious beliefs. The joint approach to a patient with a serious, progressive and incurable illness must be centred around respect for autonomy while seeking to guarantee as much as possible the remaining quality of life and comfort.     Useful links Fédération Bruxelloise de Soins Palliatifs (FBSP)  Association pluraliste de soins palliatifs de la région de Bruxelles (Palliabru) : +32 (0)2 743 45 92
Ressource Douleur Et Soins Palliatifs - Erasme